After 3 kids and getting other issues fixed over time, I went to see a urologist today for the issues that I am having. Things started off well. The normal questions and the normal exams.
Then the doctor came in and talked to me. He left the room and came back saying that he needed to an exam to see where my organs were and if there were issues. Obviously, there are issues or I would not be there!!
Because, of the trauma I have been through, I could not go through with the procedures that he wanted and was sent away. I guess I just have to live with this problem. Why can’t all doctors understand about trauma?
I have one doctor that will use a twilight sedation to make her patients remain comfortable. Here, there is no help. Just a doctor who completely dismissed me. Why after going through so much do I have to constantly battle for understanding and compassion from those in the medical field.
Asking for help in itself is hard for most of us. Asking for help with the symptoms of a mental illness seems impossible. There is the stereotype that still runs through our society that somehow a person with a mental illness is weak or damaged. That they cannot take care of themselves or have chosen to have this. They are just not fighting enough.
Then a person goes to the doctor. For me, I was told that within 3-5 years that I would feel better. It has been 16 years and I still feel as horrible as on day one. Even to get to the right medications took months. Sometimes the side effects would make me feel worse or cause new symptoms to creep in over the first few weeks. Give the medication time the doctor would say. I do no need time when I know that I feel worse.
My body was no longer my own. It began with the medications. Then came the sleep routines, the mediation, the ECT, and with that the memory loss. My brain was now trapped behind a barrier. I was no longer in the drivers seat. Just a passenger in a car that did not have a final destination.
The doctors do not say that your friends will feel so confused about how to treat you, that many of them will politely bow out of the friendship. They do not say that your spouse will be overwhelmed and feel like they are helpless, causing them to leave. If there are kids and the mental illness is severe enough, the system will make sure that you lose them unless you have 10’s of 1,000’s of dollars. Divorce, loss of children, loss of friends, loss of self, and a constant pressure that just gets worse over time because you are expected to be well. Somehow all of these things miss what the doctor says. Reducing symptoms is sometimes not possible and some people are treatment resistant, causing them to live in limbo.
For me, the doctors missed a lot that I wish that I had known. Maybe I could have prepared myself or at least knew the reality of the future that I was facing. B
One night, about 5 months ago, I thought that my son had his music turned up to loudly. I was getting ready to go over to his room, when I realized that he was not there. I figured that it was something outside and I let it go.
The next night, as I was attempting to relax and fall asleep, I heard music again. This has been happening almost every night since. The music changes. It might be classical, 70’s, rock, or even tribal. No matter what kind of music, it is disturbing.
None of my doctors seem to know what to do about this new symptom. Each night it is different. Music , has become my nightly companion,. I just wish that the doctors could tell me more.
Depression and PTSD have taken a part of me away. I am not even sure what that part is anymore. I know that I do not seem to have any energy, I remember the details of my traumas daily, and I struggle with things that others can do easily. I do not leave the house with the exception of therapy.
For some reason there are those that equate depression with sadness. It is so much more than that. It is like someone has completely darkened the space around you and then confined you into an even smaller space.
Cooking, laundry, showering, talking, and many other small things become absolutely earth shattering chores. With PTSD it is hard to hear triggers and try to do anything remotely easy. My cats are my support. As long as I pet them, they still like me. In fact, one of my cat’s is my emotional support animal.
There is not any medicine left to try at this point. I just need to work on my skills and try to do a little at a time. Sometimes it is very little at this point.
When the dust cleared and the agreement was signed, neither parent was supposed to negatively discuss anything about the other parent. The problem is that when one side has a top attorney and the other side does not have the money to afford an attorney, the terms of the agreement tend to get overlooked.
That is what happened to my children. It began with my ex and his mother. They would say that I was faking my mental illness, that I was not giving their father enough money. And even that I did not love them. When my ex married, the comments became worse. My kids were told that they were not from my culture, my daughter’s body was criticized, I was accused of lying and of not being genuine.
Every time that I went into the hospital for treatment of my mental illness there would be a long breaks between visits.‘I had to get letters from all of my doctors stating that I was not a danger to my children. Then I had to be evaluated by an independent doctor. This process could take as long as 10’months.
Now, my kids are teenagers. One does not speak to me and repeats that I am a selfish individual and a liar. That I do not look out for him. My second child visits and ask questions about my illness to tries to gauge the truth. He has also done some research. My third child has begun to move away from me. She is frustrated that I do not always know how I will feel in advance and believes that I am keeping the truth from her.
The state that my divorce was finalized in does not even have a statute for parental alienation. What I have learned over the past 10 years is that parental alienation begins with the adults surrounding the children. The messages become like a broken record. As the child ages, those messages are internalized and become the child’s beliefs. Once that happens it is hard to adjust their thinking.
I believe that every state should have laws regarding parental alienation and try to prevent it from happening in as many cases as possible. It can ruin a relationship between a parent and a child for life. Keeping each from experiencing the love and affection from each other. Life events go by without acknowledgement and soon kids turn into parents and grandparent is kept from their grandchild. More needs to be done!! Parents should not be shut out of a child’s life because of the other parents negative feelings.